'Betrayed by my body': The taboo health issue women are talking about on social media - BBC
Fuente: BBC News
Adrianne, a 29-year-old digital marketing professional in London, has lived with a chronic urinary tract infection (UTI) for nearly five years. It took two years to receive a diagnosis, during which she was wrongly told she might have colon cancer, Crohn's disease, or a sexually transmitted infection. The condition has stripped her of her ability to work properly, maintain relationships, and lead a normal social life. Experts estimate that chronic UTIs could affect up to 1.7 million women in the UK, with men and children also impacted.
Adrianne began sharing her experiences on TikTok, where she has accumulated around 8,000 followers. Her posts cover the pain, urgency, sleepless nights, and social isolation caused by her condition. She was initially nervous about going public, but found an unexpectedly supportive community of people sharing coping tips and mutual understanding. Hundreds of similar posts from women of all ages have emerged across TikTok and Instagram, helping to break the stigma long associated with UTIs and other bladder conditions.
A chronic UTI, which currently has no official medical definition, involves persistent infection symptoms even after a standard course of antibiotics. It can be caused by bacteria embedding in the lining of the bladder and is notoriously unpredictable. At its worst, Adrianne describes the condition as 'completely debilitating,' involving excruciating abdominal pain, constant urgency, and a deeply distressing sense of being trapped inside a body that feels like it is betraying her.
Diagnosing chronic UTIs presents significant clinical challenges. Professor Chris Harding, a consultant urologist, notes that standard urine lab tests frequently produce false negatives. Further complicating matters, there is considerable overlap between chronic UTIs and other conditions, including painful bladder syndrome, chronic pelvic pain, and endometriosis. Adrianne says she repeatedly felt dismissed by doctors who offered generic advice about hygiene and hydration rather than investigating her persistent and worsening symptoms.
Both medical experts quoted in the article emphasise that health professionals must listen carefully to each patient's full account in order to distinguish between recurrent, chronic, or other conditions. Adrianne's experience of being misdiagnosed and sidelined before finally receiving a private diagnosis reflects a broader systemic issue in how women's pain is taken seriously. Her social media presence has since evolved into a platform not only for personal expression but also for collective advocacy around an often-overlooked condition.
Traducción al japonés
ロンドンでデジタルマーケティングの仕事をするエイドリアン(29歳)は、慢性的な尿路感染症(UTI)を抱えながら約5年間生活している。診断を受けるまでに2年を要し、その間、大腸がんやクローン病、性感染症と誤診された。症状は仕事や人間関係、社会生活全般を奪うほど深刻で、専門家は英国内で最大170万人の女性が慢性UTIに苦しんでいると推定している。
エイドリアンはTikTokで体験を発信し始め、現在約8,000人のフォロワーを持つ。投稿では痛み、頻尿の切迫感、不眠、社会的孤立といった現実を赤裸々につづっている。当初は公表することに不安を覚えたが、同じ悩みを持つ人々による支援コミュニティが自然と形成された。TikTokやInstagramには同様の投稿が急増しており、UTIをめぐる長年のスティグマを打ち破る動きが広がっている。
慢性UTIには現時点で公式な医学的定義がなく、標準的な抗生物質治療を受けても症状が持続する感染症を指す。細菌が膀胱の粘膜に入り込むことが原因とされ、経過は非常に予測しにくい。エイドリアンは最悪の状態を「完全に動けなくなる」と表現し、激しい腹痛と常に感じる尿意、そして自分の体に裏切られているような深い苦しさを訴える。
慢性UTIの診断には重大な臨床的課題がある。ニューキャッスル大学病院のクリス・ハーディング教授は、尿検査で偽陰性が頻繁に生じることを指摘する。さらに、慢性UTIは有痛性膀胱症候群、慢性骨盤痛、子宮内膜症などと症状が重なるため、診断をより複雑にしている。エイドリアンは衛生や水分補給に関する一般的なアドバイスを繰り返されるだけで、深刻化する症状を真剣に取り上げてもらえなかったと語る。
記事に登場する医療専門家2名はいずれも、患者の話に丁寧に耳を傾けることの重要性を強調している。エイドリアンが誤診を繰り返された末に自費診療でようやく診断を受けた経緯は、女性の痛みが十分に重視されないという医療制度上の構造的問題を浮き彫りにしている。彼女のSNSは今や個人的な発信にとどまらず、見過ごされがちな疾患への社会的認知を高めるための集合的アドボカシーの場へと発展している。
Vocabulario clave
- debilitatingadjective
Causing severe weakness or impairment to the body or mind, making normal functioning very difficult.
和訳: 衰弱させる、消耗させる
The debilitating effects of her chronic illness meant she could rarely leave her apartment without careful planning.
- stigmanoun
A mark of disgrace or strong social disapproval associated with a particular circumstance, quality, or person.
和訳: スティグマ、社会的烙印
Campaigns to reduce the stigma surrounding mental health have encouraged more people to seek professional support.
- flare-upnoun
A sudden and severe recurrence of the symptoms of a medical condition after a period of improvement.
和訳: (症状の)急激な悪化、再燃
She always carries her medication in case a flare-up occurs while she is away from home.
- false negativenoun
A test result that incorrectly indicates the absence of a condition or substance when it is actually present.
和訳: 偽陰性
False negatives in allergy testing can leave patients without the correct treatment for years.
- crossovernoun
A significant overlap between two or more things, especially medical conditions that share similar symptoms.
和訳: 重複、交差
The crossover between anxiety disorders and certain physical illnesses makes accurate diagnosis particularly challenging.
- dismissedverb (past participle)
To have one's concerns or complaints treated as unworthy of serious attention by someone in authority.
和訳: (訴えを)取り合ってもらえない、軽くあしらわれる
Patients who feel dismissed by their doctors are far less likely to continue seeking medical help.
- go publicphrase
To reveal personal or previously private information to a wide audience, especially through media.
和訳: 公表する、世間に打ち明ける
The activist decided to go public with her diagnosis in order to raise awareness and inspire others.
- systemic issuenoun phrase
A problem that is deeply embedded in and affects an entire system or institution, rather than being isolated.
和訳: 構造的問題、制度的な問題
Researchers argue that underfunding in women's healthcare is a systemic issue that requires legislative action.
- coping mechanismnoun phrase
A strategy or behaviour that a person uses to manage stress, pain, or difficult emotions.
和訳: 対処法、コーピング・メカニズム
Exercise and journalling serve as effective coping mechanisms for many people dealing with long-term illness.














